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“We have had several conversations with her about monitoring when her body is tired,” Fred told me.“Knowledge helps us all control this.” I asked Fred if going eight years without a crisis led them to take things for granted. “From the time Ary was little, she was always doing things she shouldn’t have been doing.” Fred worried about Ary constantly.Ary produced fetal hemoglobin until she was six years old; her own body was protecting her from the painful symptoms that come with sickle cell disease.

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The cells can get stuck and clog blood vessels as they travel through. To me, getting married meant having a family and I did not want this for my kids.” I asked Fred if Yvette would say the same thing. I asked her how she felt when they finally confirmed that she did have sickle beta thalassemia. “I was devastated.” Fred agreed and said that devastation lasted about six months for him.

As they get stuck, they can cause painful crises, as they are called, in patients as well as other potentially serious complications like stroke, splenic sequestration, and acute chest syndrome, a condition similar to pneumonia. “Being able to have her and physically hold her in my arms helped me through it.” They immediately began giving Ary penicillin twice a day to prevent infection.

Well my, my the oldest scam in the book has moved itself to the personals. I recently put my profile up on Yahoo Personals and I had a few people who contacted me.

One person sent me his email and I emailed him at [email protected]( if any of you want to send nasty emails to this scammer, feel free.) I was very suspicious when the profile of this so called guy named “Randy Hall” was suddenly removed from Yahoo. I got an email back later that seemed a bit weird, especially when the guy did not talk about anything in his profile and was calling me “dear”.

Most people produce fetal hemoglobin until they are around six months old when they begin producing adult hemoglobin.

Fetal hemoglobin protects the blood cells from sickling, or turning into the crescent-moon shape that causes them to get stuck in blood vessels.

In children, untreated sickle cell disease can cause delays in development and greatly increases the risk of infection (the most common cause of death among children with sickle cell). I thought about what my baby was going to go through. Infants with sickle cell are extremely vulnerable to infection; in fact, infection is the leading cause of death among patients.

In the United States, all newborn babies undergo screening for several inherited disorders including sickle cell disease. This wasn’t what I ever would’ve wanted for my children.” Fred actually went as far as to meet with an attorney. Fred and Yvette visited the hematologist at Children’s every six months.

That is weird, my hackles were up and I was highly suspicious. In all their scammy emails (you won the lotto, bank fake email in dire need, I am a solicitor…etc..) they talk like some British Baron from the 19th Century!

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